When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
Our Granddaughter Demanded We Give Her Our Villa as It Was Nicer despite Us Paying for Vacation – I Taught Her a Lesson
My plan to treat my grandkids to a luxurious family vacation took an unexpected turn when one of my granddaughters demanded the grandest accommodation. I decided to take the unconventional route to teach her a memorable lesson.
So, my husband, John, and I, we’ve been pretty lucky in life, and we wanted to do something special for our family. Our granddaughter, Robin, got married recently, and we thought, “Why not celebrate with a big family vacation?”
A happy older couple looking out at the ocean | Source: Shutterstock
We picked Bora Bora because, honestly, who doesn’t dream of going there? It’s like one of those places you see on postcards and think, “People actually go there?” Yes, they do, and we decided we were going to be those people.
A resort in Bora Bora | Source: Shutterstock
We got a great deal on this trip. We found this beautiful place that had room for all of us – three bungalows for the grandkids and their families, and one big villa for John and me.
Villas by the beach in Bora Bora | Source: Shutterstock
The bungalows were nice, each one a thousand square feet with a king bed or two queens, a bathroom, and some outdoor space.
A tropical bungalow on the beach | Source: Shutterstock
But the villa, oh boy, it was something else. Four thousand square feet all to ourselves, with a bedroom, a bathroom that had a sauna, a living room, and the best part, an outdoor area with a bathtub, a pool, and a slide straight into the ocean. It was paradise.
A sundeck with a pool overlooking the beach | Source: Shutterstock
Now, we hadn’t even been there for a full day when the trouble started. We were all having dinner together, enjoying the breeze and the sound of the waves, when my other granddaughter, Jenny, said something about wanting to use our slide.
Dinner by the water | Source: Shutterstock
Robin, who hadn’t seen our villa yet, asked to see pictures. I showed her, thinking she’d be excited. Instead, she got upset. Really upset.
“You expect us to live like peasants while you have a 4000 sq ft villa with a sauna and pool? I want it!” she demanded, right there at the dinner table.
Woman gesturing being upset | Source: Shutterstock
I couldn’t believe my ears. First off, nobody’s a peasant in Bora Bora. Second, we thought we’d done something nice by bringing everyone there.
Woman looking confused | Source: Shutterstock
I tried explaining to Robin that it wasn’t about the size of the room but about spending time together as a family. Plus, there was only one villa, and if we gave it to her, what would that say to the others?
But she wasn’t having any of it. She accused us of holding money over her head and stormed off, threatening to leave the next day.
An older woman arguing with a younger woman who looks away as another man sits in front of them | Source: Shutterstock
John thought maybe we should just give in to keep the peace, but something in me just couldn’t do that. It wasn’t right. All we wanted was a nice family vacation, and now it felt like everything was falling apart because of a room.
A man listening to a woman who’s touching his shoulder | Source: Shutterstock
So, that night, I barely got a wink of sleep. John was out like a light, but me? I was tossing and turning, thinking about Robin and her tantrum over the villa.
It’s funny, you know? One minute they’re little, needing you for everything, and the next, they’re all grown up and demanding villas in Bora Bora.
A woman laying in bed awake | Source: Shutterstock
I spent the whole night thinking about what to do. Part of me wanted to let Robin have her way just to stop the drama, but another part of me thought, “No, this is a chance to teach her a valuable lesson.”
A woman in deep thought while laying in bed | Source: Shutterstock
So, the next morning, when Robin refused to come to breakfast and was acting like she wouldn’t join us for anything as long as we were there, I decided on a new approach.
Breakfast by the water | Source: Shutterstock
I told everyone that if Robin and her husband really wanted to leave, I’d respect their decision and even help them find a flight back. I wasn’t kicking them out, but I also wasn’t going to beg them to stay.
Two women at a dining table peeling apples | Source: Shutterstock
I decided it was time to take action, not just stand by hoping Robin would come around. So, I did something I never thought I’d do on what was supposed to be a relaxing vacation: I went and booked a flight for Robin and her husband to head back home.
An older woman on the phone while looking at a laptop | Source: Shutterstock
I know, it sounds harsh, right? But sometimes, you’ve got to cut the line to save the net, as my old friend used to say. I asked the hotel staff to cancel Robin’s and her husband’s remaining reservations. They were kind about it, understanding the family drama more than I wished they had to.
Receptionist taking a call | Source: Shutterstock
Then came the packing. The hotel staff, bless their hearts, went over to help Robin and her hubby pack up their things. I didn’t go with them; felt it was better to keep my distance.
A man packing clothes in a suitcase | Source: Shutterstock
But I stood there on our villa’s balcony, watching them, feeling a mix of sadness and, weirdly, relief. It was like finally deciding to take an old, broken-down fence to the dump. You didn’t want to see it go, but it had to be done for the new one to come in.
An older woman looking out from a balcony | Source: Shutterstock
Breakfast was awkward. Everyone was tiptoeing around the elephant in the room, barely touching their tropical fruit plates. I decided it was time to clear the air. “Look,” I said, “last night got out of hand. We’re here to enjoy ourselves, not fight over who gets the fancier room.”
Untouched tropical breakfast spread | Source: Shutterstock
Just then, Robin storms in, looking like she’s ready to battle. “So, what, you’re kicking me out now?” she throws out, pointing a finger at me,
An angry woman pointing an accusatory finger | Source: Shutterstock
“No, Robin,” I sigh, “We’re not kicking you out. We just think if you’re so unhappy, maybe it’s best you head back. We want this vacation to be peaceful, you know?”
You could’ve heard a pin drop. Robin looked like she couldn’t decide if she was more shocked or angry. “I…I haven’t even looked up flights yet,” she stammers out, which was pretty much what I figured.
Woman looking upset | Source: Shutterstock
“Well, I already helped you with that,” I calmly said, trying to keep the peace but stay firm.
You should have seen the look on Robin’s face when she realized I wasn’t playing the game she expected. For so long, whenever she threw a fit, the family would scramble to make things right for her. Not this time. I was calm and firm. I said I’d miss her but understood if she felt she needed to go.
Woman looking surprised | Source: Shutterstock
After they left, something unexpected happened. The rest of the family came together like never before. My other grandkids told me they were proud of how I handled the situation. They said the trip was more enjoyable without the constant drama Robin tended to bring.
An older woman and a younger woman smiling at each other | Source: Shutterstock
And just like that, the vacation turned around. We enjoyed the villa, the slide, the ocean, and most importantly, each other’s company. It was a reminder that sometimes, standing your ground does more good than giving in to unreasonable demands.
A family enjoying at the beach | Source: Shutterstock
So, that’s the story. It’s not just about a fancy villa or a family vacation gone wrong. It’s about setting boundaries, about respect, and about showing love in tough situations. And you know what? I think we all learned something valuable from it, even Robin, wherever she is.
Leave a Reply