Céline Dion’s documentary, I Am: Celine Dion, has been finally released, offering a rare and candid look into her daily struggles. In one particularly vulnerable moment, Dion shares her experience of suffering a terrifying seizure that lasted several minutes.
© I Am: Celine Dion / Sony Music and co-producers
The documentary captures a tense moment as Céline Dion undergoes a medical evaluation. The Grammy-winning artist has been struggling with spasms linked to stiff person syndrome, a rare and progressive neurological disorder.
© I Am: Celine Dion / Sony Music and co-producers
Lying down on a massage table, 56-year-old Dion experiences spasms. Her doctor, Lobo, cautions that these spasms could “lead to a crisis.”
Soon after, the icon begins to experience a severe seizure. Her doctor swiftly calls for another medical team member to give her a medication used to treat nervous system disorders.
© I Am: Celine Dion / Sony Music and co-producers
At that moment, Dion can be heard groaning in pain as she shakes uncontrollably while lying face down. In a startling moment, Dion appears wide-eyed and unable to move independently.
Despite her condition, she remains conscious and manages to signal her awareness by weakly squeezing one of the medical expert’s hands.
© I Am: Celine Dion / Sony Music and co-producers
Following the administration of two doses of a nasal spray, Dion starts to recover from the seizure. The doctor mentions that if she hadn’t responded, they would have needed to rush her to the hospital.
As the My Heart Will Go On singer seems to regain her composure, she confesses to everyone in the room that experiences like these leave her feeling “so embarrassed.”
© I Am: Celine Dion / Sony Music and co-producers
Describing her horrible experience, the singer says, “I don’t know how to express it, like, it’s just … you know, like, to not have control of yourself?” Her doctor, Lobo, explains that the likely trigger for the seizure was Dion’s recent session in the studio where she had been singing, which overstimulated her brain.
Dion replied, “Well, what am I gonna do? If I can’t get stimulated by what I love, and then I’m gonna go onstage and, like, you’re gonna put the pulse oximeter on me, and you’re gonna turn me on my back?”
© I Am: Celine Dion / Sony Music and co-producers
Céline revealed her stiff person syndrome diagnosis back in December 2022. The star had to cancel tour dates in Europe, postpone her Las Vegas residency scheduled for October 2021, and later cancel her North American tour.
We admire Céline Dion’s determination and strength in the face of the formidable challenges she has encountered. Her life has been a journey fraught with difficulties from a young age, and here are seven major struggles that have shaped her into the inspirational icon she is today.
Preview photo credit I Am: Celine Dion / Sony Music and co-producers
Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary
In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
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