Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Jennifer Lopez and Ben Affleck Have ‘PTSD’ From Their First Romance, but Her ‘This Is Me… Now’ Movie Will Still Spotlight Their Relationship
Jennifer Lopez admits not everyone in her camp initially supported the idea to document her romance with husband Ben Affleck in her upcoming “This Is Me… Now” album and companion film.
“As artists, we have to follow our heart and this is me following my heart and doing something that maybe everybody didn’t think was the best idea, but I had to do it,” Lopez tells me.
Lopez is set to drop “This Is Me… Now,” a new album that marks the 20th anniversary of “This Is Me…Then,” on Feb. 16. The Dave Meyers-directed companion short film will be released at the same time by Amazon MGM Studios.
Sure, Lopez has some worries about putting her and Affleck’s life in the spotlight because “we both have PTSD” caused by the media scrutiny they endured back when they first dated, she said, “but we’re older now. We’re wiser. We also know what’s important, what’s really important in life, and it’s not so much what other people think. It’s about being true to who you are.”
Asked if the film is a scripted feature or doc, Lopez explained, “You have to see it and you’ll have to experience it to understand it. That’s why I call it a ‘musical experience.’ Because there’s music, you can see it, you can hear it and then you’ll get to live it.”
A recent teaser for the film included a clip of Lopez saying, “When I was a little girl, when someone asked me what I wanted to be when I grew up, my answer was always… in love.”
It was almost a year ago when Lopez told me, at the premiere of her rom-com “Shotgun Wedding,” that she would love to act with Affleck again. They infamously co-starred in 2003’s “Gigli,” which bombed both with critics and at the box office. “We talk,” Lopez said at the time. “We love being together and working together so, yeah, you never know.”
Lopez and Affleck initially dated in the early 2000s. Bennifer, as they were often called, came to an end not long after they called off their wedding in 2003. The relationship was rekindled in 2021 before marrying in Las Vegas in 2022.
Lopez and Affleck’s most recent red carpet appearance took place on Dec. 5 in Hollywood when she was honored at Elle’s Women in Hollywood celebration.
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